About the KDQOL-36
The Kidney Disease Quality of Life (KDQOL) survey is a kidney disease-specific measure of HRQOL. The first version contained the Medical Outcomes Study 36 (MOS SF-36) as a generic chronic disease core, and added items relevant to patients with kidney disease, such as symptoms, burden of illness, social interaction, staff encouragement, and patient satisfaction.
The KDQOL-36, available since 2002, is a 36-item HRQOL survey with five subscales:
- The SF-12 measure of physical (PCS) and mental (MCS) functioning (1-12), with items about general health, activity limits, ability to accomplish desired tasks, depression and anxiety, energy level, and social activities.
- Burden of Kidney Disease subscale (13-16), with items about how much kidney disease interferes with daily life, takes up time, causes frustration, or makes the respondent feel like a burden.
- Symptoms and Problems subscale (17-28b), with items about how bothered a respondent feels by sore muscles, chest pain, cramps, itchy or dry skin, shortness of breath, faintness/dizziness, lack of appetite, feeling washed out or drained, numbness in the hands or feet, nausea, or problems with dialysis access.
- Effects of Kidney Disease on Daily Life subscale (29-36), with items about how bothered the respondent feels by fluid limits, diet restrictions, ability to work around the house or travel, feeling dependent on doctors and other medical staff, stress or worries, sex life, and personal appearance.
- ^ Hays RD, Kallich JD, Mapes DL, Coons SJ, Carter WB. Development of the kidney disease quality of life (KDQOL)instrument. Qual Life Res 1994, Oct;3(5):329-38